Sooooo I was completely paranoid about getting an ultrasound before we head off to San Francisco next week and even had a tiny fit last night crying myself to sleep while Bryan tried to calm me down. Sometimes I feel like few but the moms going through this can truly understand the complete awfulness of the unknowns of Spina bifida. They say the worst part is the pregnancy because simply you just dont know how your little one is doing or how he/she is going to turn out when they step out into this big world or even in just a week at the next check up. So naturally I have gone into "I need to see him and hows he doing every chance possible" and "can't I just buy an ultrasound machine and put it next to my bed so I can scan as I'd like" mode. Finding out your baby has Spina bifida is probably just about the worst thing ever for a control freak like me on the nerves ;)
I am happy to say that todays visit was a great one!
I read and am told all the time that anything can change and to expect it to in 2 weeks time!...Well after 4 weeks Chase is such a trooper, he couldnt make me prouder! His ventricles and hydrocephalus are the same as last time and no signs of increasing there which means for those of you who dont know that the spinal fluid build up in his brain has not increased since our last visit at 12mm and normal is 10mm&under so pretty low to begin with, which is good news. We saw a great shot of his opening and it looked L-5,S-1 like we were hoping for as opposed to the L-3 we were told at the last appointment, the lower the better and S-1 is the lowest possible to be eligible for fetal surgery otherwise his case would be considered too mild so already feeling fortunate there in that its low but still we can qualify for surgery to hopefully even better his outcomes. He was kicking his legs up like a champ and at the end of those precious little legs were two adorable little feet that show no signs of club feet (very common with spina bifida babies and even though its correctable with braces we are still happy to hear he most likely isnt going to have this issue)!
After finding out that some one in Bryans family has had minor clubfeet at birth I was a little worried and made sure to get a good look at his feet this time.
So I couldn't have asked for more in this visit! Of course as mom I only want to see positives but I have to say it's hard to dwell on the negatives for me because honestly theres just so much to be thankful for at this time. Its only going to get harder so the more positive I am in the beginning the better off I figure I'll be =)
So with that we will be headed up to San Francisco for 3 day detailed evaluations on Monday. If all goes well the following Tuesday we will be having fetal surgery at 9:30 AM. For those of you who are curious about the surgery we are trying to participate in I am posting a video on it =)
Thank You again for every ones support! <3
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